Lizzie Velasquez gets a lot of stares.
The 23-year-old senior at Texas State University stands 5 feet, 2 inches tall and weighs just 58 pounds.
"I can't gain weight," said Velasquez, describing the rare syndrome that blocks her body from storing fat. As a result, Velasquez is skin and bones despite eating around the clock.
"My stomach is so small that I can't eat that much," she said. "So about 30 minutes after eating I'm ready to eat again. I snack a lot just to keep my energy up."The cause of Velasquez's syndrome – so rare that it has no name – is a mystery. Only two other people are known to have it, and countless genetic tests have turned up nothing."She's missing all of her adipose tissue," said Dr. Atul Chopra, a resident in medical genetics at Baylor College of Medicine in Houston, describing the layer of cells under the skin that plump up with dietary fat. "We just don't know why.
Velasquez was born by emergency C-section weighing just less than three pounds – half of what was expected for the 36-week pregnancy. And ever since, she's been poked, prodded and stared out by dozens of doctors trying to diagnose and treat her mysterious condition.
"Once I got to about age 13, I kind of got tired of it," said Velasquez, who besides her frail frame and blindness in her right eye is surprisingly healthy. "I realized I don't really want a cure for this syndrome. If a doctor found a magic pill or some surgery that would help me gain weight, I wouldn't want it. All the struggles I've had made me who I am today."
Speechless.
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